Digital Health Passport for Epilepsy: Smarter Accessible Epilepsy Support for Children, Young People & Carers (SBRI phase 2)

A mobile app called the Digital Health Passport for Epilepsy is being developed to help children and young people with epilepsy—especially those with learning disabilities or autism—manage their condition day to day. Epilepsy care often relies on paper records, memory, and fragmented communication between families and clinicians. For children with additional needs, standard tools can be inaccessible or overwhelming. This app aims to close that gap by putting personalised, evidence-based support directly into the hands of patients and carers. It includes medication reminders and reordering to improve adherence, symptom and seizure tracking to give clinicians clearer data, and trigger-avoidance tools such as sleep support, hot weather alerts, and period tracking. If successful, the Digital Health Passport could reduce seizure frequency by helping patients avoid known triggers and stick to medication schedules. It could also streamline clinical consultations—clinicians would see more accurate, real-world data rather than relying on memory. For families, this means fewer emergency visits and more confidence in daily life. The project is a Phase 2 collaboration with Tiny Medical Apps, Young Epilepsy, and NIHR HRC PCH, building on earlier work to transform epilepsy support for a vulnerable group that is often underserved by standard digital health tools.