Active Arts, Culture & Design Public Health & Healthcare

Recite: Building Research by Communities to Address Inequities through Expression

In plain English

AI plain-English summary

Liverpool parents who mistrust government health advice will co-write stories about cancer screening and childhood immunisation, then use those stories to persuade their neighbours and local policymakers to act. This matters because routine preventive health measures in Liverpool, Knowsley and South Sefton have fallen well below national targets. Childhood vaccination rates are too low, cancer screening uptake is poor, and mental wellbeing is declining. The root cause is not lack of information but deep mistrust between communities and the authorities delivering health messages. Storytelling offers a way to rebuild that trust from the ground up, using people’s own experiences rather than top-down campaigns. If the approach works, community organisations will gain the skills and evidence to keep funding their own creative health projects. Commissioners and policymakers will see that investing in storytelling and community-led action can improve health equity. The project will produce a toolkit that helps organisations track whether their work actually reduces inequalities. Advocacy networks will push for structural changes that communities alone cannot fix—such as housing, employment, or access to services. The legacy is a trained network of storytellers and community researchers who can train others, long after the grant ends.

View original technical description
Culture and the arts contribute to health and wellbeing, shifting the focus away from 'disease' to people. Storytelling can be utilised as a way of collecting data, highlighting inequities to policy makers, providing health messages to communities and redirecting public agendas to better promote health equity. Liverpool has a long history of strong and active communities, and vibrant creativity but also has entrenched health inequalities that mean many local people live shorter lives with fewer years of good health than they should. Our recent community insight work with parents of unvaccinated children highlighted mistrust towards government and public health information. Routine preventive and promotive health interventions such as cancer screening and childhood immunisation have fallen well below national targets and there is an increasing burden of poor mental wellbeing. Our overall aim is to scale-up and sustain the integration of storytelling into community and health system efforts to address these gaps and promote health equity by building a legacy of trust and collaborative action. We will target people living in the poorest areas of Liverpool, Knowsley and South Sefton with a focus on addressing mistrust in relation to health prevention (cancer screening and childhood immunisation) and mental wellbeing promotion. We will build on existing structures to test a more integrated creative health approach. Communities, creatives and people with lived experience (PWLE) will benefit from training in community-based participatory research and in multi-media immersive storytelling to address mistrust and health inequities. We will catalyse action through the co-development of human stories on mental wellbeing, cancer screening and childhood immunisation. Creative health marketplaces will match creatives with community organisations and the health sector to galvanise new approaches. Advocacy networks will lobby decision-makers to address structural issues beyond the reach of communities. Community Innovation Teams (CITs) are already integrated within 7 of Liverpool's Primary Care Networks and consist of health providers, volunteers, community champions and PWLEs (and we will add storytellers). We will expand to Knowsley and Sefton. Teams will benefit from training in combining routine GP practice data with behaviour insight data to identify root causes of local health inequities and can access community responsive funds to co-develop creative health solutions. Our Learning Events will be used as platforms for learning, celebration, and recognising good practice. ReCITe is a research consortium and we will work with academics from different backgrounds to evaluate what works and why. Our final evaluation toolkit will help organisations track health equity indicators and provide evidence of the effectiveness of their work. We expect a legacy of community arts organisations who can attain funding through evidencing the impact of storytelling to commissioners. We further aim to develop a critical mass of storytellers, PWLE, and community organisations with the knowledge and tools to collaborate and train others beyond the programme. We expect that commissioners and policymakers will see the benefits of scaling-up and sustaining a strategic creative health approach which builds community trust and increases health equity.

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Researchers

Aidan Jolly (Co-Investigator)Daniel Hungerford (Co-Investigator)Ema Kelly (Co-Investigator)Liz Fisher (Co-Investigator)Madeline Heneghan (Co-Investigator)Marie Caslin (Co-Investigator)Mark Green (Co-Investigator)Matthew Ashton (Co-Investigator)Mike Morris (Co-Investigator)Miriam Taegtmeyer (Principal Investigator)Rachel Marsden (Co-Investigator)Rachel Tolhurst (Co-Investigator)Sarah Ann Maclennan (Co-Investigator)Shelda-Jane Smith (Co-Investigator)Stephan Lewandowsky (Co-Investigator)Victoria Doyle (Co-Investigator)Victoria Ekpo (Co-Investigator)Xingna Zhang (Co-Investigator)

Related Research

Grants with similar aims, by meaning.

Building Research by Communities to address Inequities through Expression (ReCITE) Consortium
ReCITE: Building Research by Communities to Address Inequities Through Expression (Phase 3)
Representing communities: developing the creative power of people to improve health and well-being
Creating Change: A collaborative action inquiry approach for integrating creativity and community assets into ICS responses to Health Disparities
Active Communities Arts Development: Social Prescribing, Sustainable Strategic Planning And Breaking Down Barriers Across Sectors In North Lanarkshire

Original classification

Research and Innovation

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