Completed Psychology & Behaviour Heart, Stroke & Blood

A cluster randomised controlled trial of a structured training programme for caregivers of in-patients after stroke

Funder MRC (part of UKRI)
Recipient organisation University of Leeds
Funding £1.6M
Period Mar 2007 — Nov 2011

In plain English

AI plain-English summary

A structured training programme for caregivers of stroke patients is being tested across 36 hospital stroke units in the UK to see if it reduces family burden and improves patient recovery. After a stroke, many patients need help with basic tasks like moving, bathing, dressing, and toileting. Once discharged, this care typically falls to family members, who often become stressed and anxious, while patients may become depressed and reluctant to go out. Current care pathways rarely provide hands-on training for these caregivers. This trial directly addresses that gap by testing whether a practical, skills-based programme—rather than just verbal advice—can improve outcomes for both patients and the people caring for them. If the training proves effective, the researchers will recommend it be offered to all stroke patients and their caregivers after hospital discharge. The impact would be tangible: less caregiver stress, better patient mobility and mental health, and potentially lower long-term healthcare costs by reducing readmissions or the need for formal care. The study also includes a cost-effectiveness analysis, so funders and NHS trusts would have clear evidence on whether the programme delivers value for money.

View original technical description
We aim to test whether a training programme provided to carers of stroke patients can reduce the burden on caregivers and improve stroke patients’ rehabilitation. Following a stroke, many patients are disabled and require help with activities of daily living, such as moving, bathing, dressing, and toileting. After discharge from hospital, this help is often provided by family members. The sudden change in lifestyle is very difficult and it can be hard for stroke patients and their families to cope. Many patients become depressed and are reluctant to go out and caregivers become stressed and anxious. This study aims to see if a hands on structured training programme for carers can reduce this burden and also improve patient’s physical ability. The study involves 36 hospital stroke units from different areas of the country. In half of these stroke units, caregivers will be trained using the hands on skilled training programme. We will compare patients and caregivers that have received the training with those who have not. We will look at their mental health, social life, physical progress and value for money. If the study shows that patients and caregivers do better with the training, we will be able to suggest that such a training programme be provided to all patients and their caregivers after stroke

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Researchers

Amanda Farrin (Co-Investigator)Anita Patel (Co-Investigator)Anne Forster (Principal Investigator)D Smithard (Co-Investigator)Jane Nixon (Co-Investigator)John Young (Co-Investigator)Lalit Kalra (Co-Investigator)Martin Knapp (Co-Investigator)

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Original classification

Research Grant

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