Completed Public Health & Healthcare Lungs & Breathing

Discover-NOW: The Health Data Research Hub for Real World Evidence

In plain English

AI plain-English summary

Every time a patient in North West London or Greater Manchester visits their GP or a hospital, their de-identified health data could soon help build new tools to diagnose and prevent disease. The problem is that this data—collected routinely for care—is rarely used at scale for research. Current systems lack the infrastructure to link records across hospitals, GP surgeries, and genomic databases in a way that is both secure and efficient. This hub aims to create that infrastructure: an applied research database that connects leading hospitals and research organisations in two of the UK’s most data-rich regions. If successful, the hub will allow scientists and companies to develop a new generation of digital health tools—powered by artificial intelligence and genomics—that could improve how diseases are managed or even prevented. The impact is on the healthcare system itself: faster, safer development of diagnostics, treatments, and services that rely on real-world evidence rather than controlled trials alone. The project is not curiosity-driven. It is explicitly designed to build a trusted platform for applied research, with patient consent and community engagement at its core.

View original technical description
"Information is collected every time a patient sees their GP or attends hospital. This is used by patients and care teams to ensure the best care is delivered. With appropriate controls and consent, the de-identified data can also be used to support research to find new ways to diagnose and treat disease and make care better and safer. North West London and Greater Manchester are home to some of the world’s leading hospitals and research organisations. We want to work across these ecosystems to build an applied research database that can help scientists and companies develop a new generation of tools and services that could help us manage many diseases and, in many cases, prevent them happening in the first place. Building innovative healthcare technologies is possible only through partnership. We will work closely with local communities and patient groups to involve and engage them throughout in completely new ways, ensuring their data is only used under appropriate controls and consent. There are substantial opportunities to improve healthcare through advances in genomics, artificial-intelligence and digital health and as a Digital Innovation Hub, we feel that we can undertake cutting edge research and develop new healthcare tools in a trusted way."

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Researchers

Axel Heitmueller (Principal Investigator)Sanjay Gautama (Co-Investigator)

Related Research

Grants with similar aims, by meaning.

FedN: A Federated North
INSIGHT: The Health Data Research Hub for Eye Health
King's Health Partners Digital Health Hub
Yorkshire and Humber Secure Data Environment
DARE: Creating the blueprint for a federated network of next generation, cross-council Trusted Research Environments.

Original classification

Intramural

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