Completed Digestion, Kidneys & Other Organs NIHR-supported project Pregnancy, Children & Inherited Conditions

Stevens–Johnson syndrome Passport

In plain English

AI plain-English summary

A patient hospitalised with a severe allergic reaction carries a card that tells doctors exactly which drugs to avoid. Stevens–Johnson syndrome (SJS) is a rare but life-threatening skin reaction, often triggered by common medicines such as antibiotics or anticonvulsants. Once a patient has had SJS, re-exposure to the same drug can trigger a more severe, sometimes fatal, episode. Currently, there is no standardised way to communicate a patient’s trigger drug across different hospitals or healthcare settings. This project will develop a “passport” — a physical or digital document that records the patient’s diagnosis and the specific drug that caused it. If successful, the passport would give emergency clinicians immediate, reliable information at the point of care, reducing the risk of accidental re-exposure. This is not fundamental science; it is a practical tool designed to plug a gap in patient safety. The passport could become part of routine discharge planning for SJS patients, and its design may later be adapted for other rare drug-induced conditions.

View original technical description
The development of a passport to be used to aid the identification and treatment of Stephen Johnson Syndrome

Researchers

Jennifer Downing (Principal Investigator)

Related Research

Grants with similar aims, by meaning.

Strategy to Improve Detection and Reporting of Adverse Drug Reactions
IBD Digital Health Passport
UK-Irish Atopic eczema Systemic TherApy Register -Bio
Asthma self management Digital Health Passport
Co-designing a Health Passport to support mental health for young people with long term conditions

Original classification

Person-Centred Complex Care

Plain English summaries and category classifications on this site are generated by AI and may not perfectly reflect the original research.