Completed Mental Health NIHR-supported project Pregnancy, Children & Inherited Conditions

Long Covid in young people: a Delphi study on what young people and their families agree has been most helpful in their pathways to recovery.

In plain English

AI plain-English summary

Young people recovering from Long Covid and their families will decide, through a structured voting process, which treatments and strategies they agree are most helpful. The study directly addresses a gap in current research: while clinics offer physiotherapy, occupational therapy, and psychological support, no one has systematically asked young patients and their families what they actually found useful on their road to recovery. In the first round, researchers will interview families from University College London Hospital’s Long Covid clinic. They will then turn common themes into a questionnaire, which will be sent to the original interviewees plus at least 30 other young people from clinics across the UK. In two further rounds, participants will rate their agreement until a consensus emerges on the most helpful aspects of care. If successful, the findings will give clinicians a clear, patient-led list of what works—replacing guesswork with evidence from those who have lived through the condition. This could help standardise support across NHS paediatric Long Covid services, ensuring that limited resources go toward strategies that young people and their families actually value.

View original technical description
Following infection with the SARS CoV-2 virus ("Covid"), a small number of people go on to develop "Post COVID-19 Condition", commonly referred to as "Long Covid". Frequently reported Long Covid symptoms in patients are "brain fog", persistent fatigue and shortness of breath. Due to the recent emergence of the condition, research into the best ways of treating Long Covid is limited. Some research has indicated that treatment for Long Covid often involves physiotherapy, occupational therapy and psychological therapy. What currently seems to be lacking is research into the perspectives of young people and their families in terms of what treatment, interventions and strategies are most useful for their recovery from Long Covid. The aim of the current Delphi study is therefore to reach agreement between young people who have received support from a Paediatric Long Covid Clinic on what they found most helpful on their journeys to recovery from Long Covid. In the first round of the Delphi process, young people and families accessing University College London Hospital NHS Foundation Trust Long Covid clinic will be invited to take part in an interview. The interviews will be analysed and common themes will be collated in a questionnaire. This questionnaire will be sent to the original interviewees, as well as a minimum of 30 other young people accessing other Long Covid Clinics across the UK. Participants will be asked to rate their agreement with the statements on the questionnaire during round 2 of the study. In the third and final round a personalised questionnaire will be sent out to establish consensus on the most helpful aspects of treatment. The proposed research is being carried out as part of a doctorate in clinical psychology, which is funded by the NHS. There is no additional external funding.

Researchers

Abi Jenkins (Principal Investigator)

Related Research

Grants with similar aims, by meaning.

Improving Social Support and Recovery for Young People Affected by Long Covid: Qualitative Study
Non-hospitalised Children & young people (CYP) with Long Covid (The CLoCk Study)
Adaptation and validation of a patient-reported outcome measure capturing Long COVID symptom burden in adolescents: The Symptom Burden Questionnaire for Long COVID in Young People (SBQ-LC-YP)
Investigating the neurological impact of COVID-19 in non-hospitalised children with persistent symptoms
Understanding and using family experiences of managing long Covid to support self care and timely access to services

Original classification

Infection, Immunopathology & Immunotherapeutics

Plain English summaries and category classifications on this site are generated by AI and may not perfectly reflect the original research.