Completed Public Health & Healthcare Pregnancy, Children & Inherited Conditions

Scottish Health Informatics Programme (SHIP) .

In plain English

AI plain-English summary

Scotland is building a single, secure research platform that gives scientists access to millions of anonymous NHS patient records. The Scottish Health Informatics Programme (SHIP) will link electronic patient records with genomic data, socioeconomic information, and environmental data—creating a national resource for large-scale health studies that currently do not exist in the UK. This matters because most medical research relies on small, controlled trials or fragmented datasets that cannot capture how diseases actually develop across an entire population over time. SHIP will allow researchers to track drug side effects in real time, study diabetes across different communities, and run clinical trials using real-world patient data rather than artificial study conditions. If successful, the platform will transform how the NHS monitors treatment safety and how scientists understand the interplay between genes, environment, and health. The programme also includes public engagement to establish transparent governance for using patient records in research—addressing the trust gap that currently limits this kind of data use. SHIP is primarily an infrastructure project: it builds the pipes, not the water, but without it, most future population-scale health research in the UK cannot happen.

View original technical description
The Scottish Health Informatics Programme (SHIP) is an ambitious inter-disciplinary, multi-institutional research programme that will result in high impact research findings, and create a legacy platform for research using electronic patient records (EPRs) in the United Kingdom. The bid has five key deliverables: To provide access to an exciting new national research facility, firmly embedded within and supported by NHS Scotland, providing the basis for numerous future studies using EPRs. To develop and evaluate innovative approaches to the storage, interrogation and linkage of external third party datasets, including genomic information, to EPRs. To provide training and workshops, as well as a biennial international conference; the only inter-disciplinary conference of its type which brings together world leaders in this field. To undertake public engagement activities, building on considerable experience in the field of public s attitudes to genetic studies, to define a transparent and publicly acceptable approach to the governance of EPR research. To produce novel research using EPRs and major longitudinal cohort databases, specifically in the areas of clinical trials, pharmacovigilance, diabetes epidemiology, and research resulting from the linkage of EPRs to socioeconomic and environmental data.

View the original record at the funder ↗

Researchers

Andrew Morris (EPMC Awardee)

Related Research

Grants with similar aims, by meaning.

MICA: The Scottish eHealth Informatics Research Centre
The Dundee Edinburgh Cancer Informatics Programme: Harnessing Excellent Research (DECIPHER)
Scottish Collaboration for Public Health Research and Policy
Scottish Hepatology Access Research Partnership (SHARP)
The SHIPS study: SHaring Information at the Primary/Secondary care interface for patients with a poor prognosis

Original classification

Project Grant

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