Active Mental Health

For the many, not just the few: Improving help-seeking for Obsessive Compulsive Disorder among UK-based ethnic minority adolescents

In plain English

AI plain-English summary

A UK-based ethnic minority teenager with Obsessive Compulsive Disorder is far less likely to get help than their White peers, even though the condition affects both groups equally. This matters because nearly half of all OCD cases begin before age 18, making adolescence a critical window for intervention. Yet almost no UK research has examined why ethnic minority adolescents do not seek help. Existing US studies point to cultural barriers, but the UK context—with different healthcare systems, school structures, and ethnic communities—remains unexplored. Without understanding these lived experiences, efforts to close the treatment gap will remain guesswork. The researcher will use four work packages combining interviews, surveys, and arts-based participatory methods to map the specific barriers and facilitators these adolescents face. If successful, the findings could directly inform how mental health services, schools, and community organisations reach out to ethnic minority teenagers with OCD. This could reshape referral pathways, public health messaging, and clinician training to make help-seeking more accessible—not just for the few who currently find their way into treatment, but for the many who do not.

View original technical description
Obsessive Compulsive Disorder (OCD) is a distressing mental health disorder that, in Western contexts, is just as prevalent among ethnic minorities as White individuals. Despite this, rates of service use are much lower among ethnic minority adults and adolescents with OCD, highlighting a considerable treatment gap. Findings from the US have highlighted several barriers that ethnic minorities may experience when seeking help for OCD, yet very little research has been conducted in the UK, particularly among adolescents. As almost half of individuals with OCD begin to experience symptoms before the age of 18, adolescence is a key period of potential intervention. However, to improve help-seeking among UK-based ethnic minority adolescents with OCD, we first need to understand their lived experiences and the barriers and facilitators they may face. Therefore, this proposal comprises a programme of four work packages which use qualitative, quantitative, and arts-based participatory methods to address this gap in our knowledge, with research training and skills development that will contribute to my growth as a researcher.

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Researchers

Nina Higson-Sweeney (EPMC Awardee)

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Original classification

Wellcome Accelerator Awards

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