Active Public Health & Healthcare Society, Politics & Law

A Transnational History of HIV/AIDS Denial: Origins, manifestations, and persistence, 1981 to the present

In plain English

AI plain-English summary

Since the first HIV tests and treatments appeared, so did people who insisted the virus does not cause AIDS or that neither exists at all. This project investigates why HIV/AIDS denialism emerged, how it spread across borders, and why it persists—focusing on the UK and Australia. The problem is urgent: denialist beliefs have been linked to preventable infections and deaths, especially in post-apartheid South Africa. Yet previous efforts to counter denialism often silenced its proponents without understanding its roots. The research fills a gap by treating denialism not as simple ignorance but as a form of medical heterodoxy shaped by identity, emotion, culture, and communication technology. If successful, the project will provide historical foundations for new approaches to addressing medical denialism—moving beyond shaming to understand the values and attachments that drive it. This could inform how public health agencies, clinicians, and policymakers respond to future outbreaks of medical skepticism, whether about vaccines, treatments, or other interventions. The work is primarily historical and cultural, not a clinical trial or intervention study. It aims to change how we think about denial, not to test a new drug or policy.

View original technical description
As long as there have been interventions to understand, prevent, and treat HIV and AIDS, there have been those who deny HIV causes AIDS, or that the virus and the syndrome even exist at all. HIV/AIDS denialist beliefs have been linked to numerous preventable HIV infections and AIDS-related deaths, particularly in post-apartheid South Africa. The life and death nature of HIV/AIDS denialism motivated many to silence its ideas and activists without investigating its origins, antecedents or links to wider medical skepticism and patient activism. This project will examine the transnational history of this HIV/AIDS denial and its consequences within the UK and Australia, from its origins to the present. Drawing on a carefully assembled toolkit of historical, literary, and cultural studies methods, it will ask how, when and why people engaged in HIV/AIDS denial to provide new understandings of denialism as medical heterodoxy, and transform concepts of medical resistance by rooting them in historically-mutable identities, affective attachments, cultural systems, and transnational communication technologies. In illuminating the historical roots of denialism, the project will provide the foundations for new approaches to addressing denial, that move beyond shaming to consider the rootedness of subjectivities, technologies, and values motivating denialist activism.

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Researchers

Hannah Elizabeth (EPMC Awardee)

Related Research

Grants with similar aims, by meaning.

An evaluation of legal responses to HIV and AIDS
Communicating Prevention: Queer Activism, Health Education Campaigns and Lived Experiences of HIV/AIDS in Scotland, 1980s-90s.
National decisions in a changing epidemic: Immigration, gender and the making of British HIV/AIDS policy since 1995.
Before HIV: Homosex and Venereal Disease, c.1939-1984.
Border Panic: AIDS, Immigration and Asylum in the UK, 1985-2005

Original classification

Career Development Award

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