Active Pregnancy, Children & Inherited Conditions Psychology & Behaviour

The impact of late diagnosis of autism and ADHD on long term educational and economic outcomes.

In plain English

AI plain-English summary

A late autism or ADHD diagnosis can lock a child into years of avoidable struggle at school and in the job market. This project uses UK longitudinal data—from the Millennium Cohort Study, school records, and tax data—to measure exactly how much a delayed diagnosis costs individuals in lost educational progress and lifetime earnings. The researchers will then build an economic model to simulate what happens if a child receives a diagnosis and support earlier, rather than later in adolescence or early adulthood. They will also interview autistic and ADHD adults, working with them as co-researchers, to understand the real-world experience behind the numbers. If this research succeeds, it could give policymakers hard evidence to shift school screening and NHS diagnostic pathways. The economic model would show, in pounds and pence, the return on investing in earlier identification. That could change how schools, local authorities, and health commissioners prioritise resources—moving from reactive crisis support to proactive, timely intervention. The qualitative work ensures the numbers are grounded in lived reality, not just spreadsheets.

View original technical description
This PhD project aims to determine the impact of late diagnosis of autism and ADHD on long-term educational and economic outcomes. The project will utilise longitudinal data from the Millennium Cohort Study, National Pupil Database and HMRC records to determine the impact that being diagnosed later in childhood/early adulthood may have on educational attainment and progress and economic outcomes. From this, economic modelling will be undertaken to simulate the lifelong impact of receiving a diagnosis and/or appropriate support earlier in life - either using existing microsimulation models or building a new model (if necessary). The project will also aim to undertake qualitative research to ascertain insights into experiences of autistic and ADHD individuals, to provide context and greater understanding to any quantitative outputs. The project will endeavour to use qualitative methodologies that involve coproduction with those who are experts by experience.

View the original record at the funder ↗

Researchers

Ella Moxon (EPMC Awardee)

Related Research

Grants with similar aims, by meaning.

Exploring the Impact of Clinical Diagnosis on Health and Education Outcomes for Children Receiving Special Educational Needs support for Autism
The lost generation: How a lack of identification of ADHD and autism fails millions of adults
Longitudinal studies to investigate adult outcomes of autism and autistic traits
Autism - Understanding Developmental trajectories, and Inequalities in diagnosis and Treatment in adults aged 50 and over (AUDIT-50)
Causes and consequences of mental health challenges in autistic individuals during the transition to adulthood

Original classification

PhD Studentship (Basic)

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