Completed Public Health & Healthcare Mental Health

‘People like you’: contemporary figures of personalisation

In plain English

AI plain-English summary

Personalised medicine promises treatments tailored to your DNA, but the very idea of what a "person" is—and who gets to define it—is being reshaped by data collection, digital platforms, and healthcare algorithms. This project examines how the concept of the person is changing across medicine, data science, and digital culture, and asks whether these changes are good for our health. The problem is that personalised medicine is usually discussed in narrow technical terms—genetic profiles, biomarkers, risk scores—while the broader cultural and social forces that define who counts as a "person" are ignored. This project fills that gap by studying both top-down personalisation (such as NHS risk-stratification tools) and open-ended practices (such as patient-led health data sharing), using a "figural" approach borrowed from the humanities. If successful, this research could reshape how healthcare priorities are set and how individuals understand their own agency in medical systems. It may influence how patient data is collected, interpreted, and acted upon—not just by doctors, but by the algorithms and platforms that increasingly mediate health decisions. The project is primarily conceptual and critical, not a practical tool or intervention. It aims to provoke debate, not deliver a product.

View original technical description
We aim to contribute to critical medical humanities by investigating an emergent culture of personalisation in the UK, associated concepts of the person and health. We expect to stimulate debate on personalised medicine by showing how it can be understood more fully in relation to other personalising practices and how features shared across this broad field are consequential for our wellbeing. Our innovative figural approach will be applied to case studies of both top-down and open-ended practices of personalisation in medicine, data science and digital culture. In collaboration with creative consultants, we will conduct practice-led research to produce additional insight into the role of participation in, and the sense made of, personalisation. Our aim is to put the ‘person’ back into personalisation, and relate such persons to the data collected from them and on their behalf. This approach will allow us to investigate individuals’ sense of self, agency and identification with others. It will allow us to consider the implications of new techniques for stratifying ‘persons’ precisely in shaping health outcomes and healthcare priorities. In sum, we will assess whether personalising practices, considered together, are influencing taken-for-granted concepts of the person with consequences for individual and collective health.

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Researchers

Celia Lury (EPMC Awardee)Helen Ward (EPMC Awardee)Sophie Day (EPMC Awardee)

Related Research

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Translations and transformations in patienthood: cancer in the post-genomics era .

Original classification

Collaborative Award in H&SS

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