Active Public Health & Healthcare Computing & AI

EPIC: Epistemic Injustice in Health Care

In plain English

AI plain-English summary

A doctor dismisses a patient's symptoms as "anxiety" because the patient is a woman, or a clinician fails to explain a diagnosis in plain terms because the patient lacks a medical degree—these are not just rudeness, but a specific form of harm called epistemic injustice. This project addresses a gap in healthcare research: while the concept of epistemic injustice—where someone is wronged specifically in their capacity as a knower—has been applied to medicine, it has not been rigorously tested or systematically studied. The EPIC project will fill this gap by conducting six detailed case studies of real-world instances where ill people are disbelieved, ignored, or not taken seriously by healthcare systems. If successful, EPIC could change how clinicians are trained and how healthcare is delivered. It aims to develop practical strategies—such as new communication protocols or patient-involvement frameworks—that prevent patients from being silenced or discredited. The ultimate goal is a healthcare paradigm that treats patients as credible experts on their own bodies, reducing health inequalities and improving clinical outcomes for everyone.

View original technical description
The concept of epistemic injustice (EI) in healthcare identifies epistemically unjust ways of conceiving of illness, treating ill persons, and allocating healthcare. This application to healthcare, initiated by Carel and Kidd, has inaugurated a new research area, with it's own significant and growing literature. However, much work remains to be done. There are understudied forms of EI in healthcare; there is a need for detailed empirical study of EI cases in healthcare and for empirical testing and validation of the concept; there is little research on how EI could be ameliorated; and the conceptual resources of EI need to be integrated into wider discourses about healthcare. Epistemic Injustice in Health Care (EPIC) is a bold six-year research project which will address these issues. EPIC will create a step-change in EI research by addressing these four problems. The project will fill lacunae in existing EI theory; test the validity of the concept via six case studies of EI in ill health; develop strategies of amelioration; and introduce academic and clinical researchers and patient groups to EI to develop its theoretical and practical possibilities. EPIC will offer a new healthcare paradigm, that will benefit patients, increase health equality, and improve healthcare.

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Researchers

Havi Carel (EPMC Awardee)Ian Kidd (EPMC Awardee)Lisa Bortolotti (EPMC Awardee)Matthew Broome (EPMC Awardee)Sheelagh McGuinness (EPMC Awardee)

Related Research

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Original classification

Discovery Award

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