Active Public Health & Healthcare Mental Health

PharmaSMaSH Pharmaceutical Geographies of Self Managed Sexual Health

In plain English

AI plain-English summary

People are buying abortion pills, HIV prevention drugs, and gender transition hormones outside the formal healthcare system—often because they cannot afford a doctor or because the treatment is stigmatised or illegal where they live. This is the first large-scale, transnational study of that phenomenon, which researchers call "self-managed health." The problem is that these clandestine treatment networks are growing fast, but policymakers and clinicians know almost nothing about how they work or whether the medications people obtain are safe. PharmaSMaSH will work directly with people who self-manage these three conditions—abortion, HIV/AIDS prevention, and gender transition—to map how they access drugs and information, and to test the safety of the medications circulating in these communities. If the research succeeds, it could reshape how health services are designed and delivered, particularly for stigmatised or legally restricted treatments. The findings may help public health systems integrate self-managed care safely, rather than ignoring or criminalising it, and could inform policy on drug regulation, supply chains, and patient support outside the clinic.

View original technical description
PharmaSMaSH is the first large scale, transnational study of "self-managed health". Self-managed health takes place when people get medicines and treatments outside the formal healthcare system, usually because they can't afford medical bills or because where they live means the treatment they want is stigmatised or illegal. Self-managed health is especially prevalent on issues of sexual and reproductive health, because these issues tend to be highly stigmatised and regulated by additional laws. PharmaSMaSH will explore three relevant examples of self-managed health: people who use pills to self-manage abortion, people who use antiretrovirals to self-manage HIV/AIDS prevention, and people who use sex hormones to self-manage gender transition. Treatment communities for these products and treatments self-organise around the world, circulating medications and information on how to use them. PharmaSMaSH will provide insight into the world of clandestine self-managed health, which is rapidly growing but poorly understood in scholarship and policy. By working with people who self-manage these health issues to understand how they access treatment and whether the medication they take is safe, PharmaSMaSH will find out if and how these communities can improve the design and delivery of health services - ultimately working with stakeholders from policy, clinical care, and civil society.

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Researchers

Sydney Calkin (Principal Investigator)

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Original classification

Research Grant

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