Completed Public Health & Healthcare Economics & Business

Health Data Research UK

In plain English

AI plain-English summary

The UK is building a single, nationwide system to unlock health and social care data for research, linking patient records from the NHS, local authorities, and other sources. Currently, this data is scattered across thousands of separate databases, held by different organisations with incompatible formats and strict access rules. This fragmentation prevents researchers from spotting patterns across the whole population—such as how a new drug performs in real-world use, or which social factors predict hospital readmission. The project creates a framework for data exchange, bringing together NHS bodies, universities, and industry under common standards. It also trains a new generation of "translational informaticians"—people who combine clinical knowledge with data science skills. If successful, the system could transform how the UK runs clinical trials, monitors disease outbreaks, and evaluates treatments, without requiring patients to visit a single new clinic. The infrastructure itself is invisible to the public, but it would quietly underpin faster diagnoses, safer prescriptions, and more efficient health services. This is not a single experiment; it is a permanent national capability for data-driven medicine.

View original technical description
The UK Institute for Health and Biomedical Informatics Research aims to transform the capacity and capability of health data science in the UK. The ultimate goal is to enable access to health and social care data for research and clinical benefit across the whole population. - Taking a national perspective for health informatics, it will establish leadership and coordination to develop the analytic expertise and technological advances required to capitalise on the UK’s unique data resources. - It will create a framework for data exchange in partnership with the owners and controllers of health, administrative, and social care data, regional and national NHS bodies, academia and industry. - It will drive a capacity building strategy to develop a new cadre of translational informaticians from both technological and clinical backgrounds.

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Researchers

Andrew Morris (EPMC Awardee)

Related Research

Grants with similar aims, by meaning.

Health Data Research UK - UK Regional Networks
UK Health Informatics Research Network
Infrastructure and Services - Technology Services Ecosystem
MICA: The Scottish eHealth Informatics Research Centre
UKRI ISCF DIH Programme Phase 3– Innovation Gateway, Health Data Research Hubs, and UK Health Data Research Alliance

Original classification

Strategic Support: Science

Plain English summaries and category classifications on this site are generated by AI and may not perfectly reflect the original research.