SISTAH: Understanding and Enhancing Cancer Health Equity for Black and Mixed Black ethnic minority Women through a community participatory-based approach (CBPR) and Sistah Circles/Sister Circles.
In plain English
AI plain-English summaryBlack women from Black and mixed Black ethnic backgrounds in the UK are being diagnosed with breast, ovarian, and uterine cancers at later, more dangerous stages than other women. This matters because late diagnosis makes treatment less likely to succeed, and the problem is worsening. The reasons are not simply medical: structural barriers such as unreliable transport, caregiving responsibilities, and financial strain delay women from seeking help. Meanwhile, overlapping factors like race and disability complicate how women make decisions about their health. The research team will work directly with these women—through interviews, community focus groups, and Sistah/Sister Circles that incorporate arts and yoga—to understand what drives low symptom awareness and what blocks access to care. If this succeeds, the project will produce concrete recommendations for improving healthcare services, shaped by the women who use them. The findings will reach policymakers through a parliamentary roundtable and the public through a podcast and publications. The work also advances the career of a Black female academic, supporting a health equity paper, a book on Black women’s health, and a resubmitted professorship application. The goal is not just to describe the disparity, but to give women the tools and voice to change it.
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