Active Public Health & Healthcare Society, Politics & Law

SISTAH: Understanding and Enhancing Cancer Health Equity for Black and Mixed Black ethnic minority Women through a community participatory-based approach (CBPR) and Sistah Circles/Sister Circles.

In plain English

AI plain-English summary

Black women from Black and mixed Black ethnic backgrounds in the UK are being diagnosed with breast, ovarian, and uterine cancers at later, more dangerous stages than other women. This matters because late diagnosis makes treatment less likely to succeed, and the problem is worsening. The reasons are not simply medical: structural barriers such as unreliable transport, caregiving responsibilities, and financial strain delay women from seeking help. Meanwhile, overlapping factors like race and disability complicate how women make decisions about their health. The research team will work directly with these women—through interviews, community focus groups, and Sistah/Sister Circles that incorporate arts and yoga—to understand what drives low symptom awareness and what blocks access to care. If this succeeds, the project will produce concrete recommendations for improving healthcare services, shaped by the women who use them. The findings will reach policymakers through a parliamentary roundtable and the public through a podcast and publications. The work also advances the career of a Black female academic, supporting a health equity paper, a book on Black women’s health, and a resubmitted professorship application. The goal is not just to describe the disparity, but to give women the tools and voice to change it.

View original technical description
Black and mixed Black ethnic minority women in the UK are more likely to be diagnosed with breast, ovarian, and uterine cancers at later stages, when treatment is less likely to be successful, and experience varying cancer incidence rates expected to increase. Low symptom awareness and barriers to presentation delay diagnosis, while intersecting factors like race and disability complicate decision-making. These women face structural inequalities (transport, caregiving, and finance), contributing to late-stage diagnoses. This study aims to generate evidence for decision-making among these women, focusing on these cancers. Using interviews and community-based focus groups with arts, yoga, and Sistah/Sister Circle methodology, the study will assess cancer awareness, identify factors affecting healthcare access, explore the influence of intersectionality on decision-making, and empower women to advocate for their care. Collaborating with women to ensure their experiences and voices are central, the research employs community-based participatory research, involving them as researchers and co-designing outputs. The project will create healthcare improvement recommendations, sharing findings through a podcast, publications, and a parliamentary roundtable. Additionally, funding will support a health equity paper, academic coaching, a book on Black Women’s Health, and the re-submission of a Professor application to advance the career of a Black female academic.

View the original record at the funder ↗

Researchers

Natalie Darko (EPMC Awardee)

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Original classification

Wellcome Accelerator Awards

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